"UNDER OUR SKIN Saved My Life"

We received the following email in August from Nathan Land, a newly married former athlete in Florida. The subject of his email was: "Your documentary saved my life." Years after the film's release, we want to continue to share moving personal stories that illuminate the experience of Lyme sufferers and communicate the need for awareness. Nathan's story was particularly touching:

I want to thank you for making the documentary UNDER OUR SKIN. Before seeing it, I was living a tortured life from the moment I opened my eyes to the time they were closed. I had severe insomnia, major panic attacks, anxiety throughout my day, arthritis in my joints that became unbearable. I became socially detached and would not leave my house for days, sometimes weeks at a time. I have constant tremors like I'm an old man, involuntary jerks, especially at night or anytime I try to relax my body. I have a rash on my face most of the time, am tired all the time, and any sort of exercise or exertion sends me over the edge into a shaking, dizzy, anxiety filled mess.

Going back in time, I had just graduated college in 1999 from the University of Florida and was setting my sails on life's great journey. I had played baseball and football all my life until then and was still playing softball three nights a week at this point. I was a very fit, strong active young man. On top of that I was working full time and going out at least two nights a week with friends. Suddenly I began feeling very tired all the time, could not sleep for the life of me and started having panic attacks. I didn't even know what a panic attack was at the time. All of this stuff was very scary and led me to the emergency room numerous times. I also began seeing every type of doctor I could find. Neurologists, cardiologists, psychologists, a rheumatologist, a gastroenterologist, etc. I was examined by anyone and everyone I could find. The answers were always the same. "You look like a healthy strong young man. You need to go out, live your life and stop thinking you are sick. The mind can really be powerful. You should go to see a psychologist, they can help you." The problem with that was I had already been to a psychologist and was on a myriad of psychotropic drugs and none of them did a thing for me - except the Xanax which would provide temporary relief from the panic and anxiety that gripped me so tightly.

After seeing numerous doctors from 2000 to 2002 and getting no diagnosis, I began researching on the internet looking for answers. I would search and search on these self diagnosis websites, and compare my symptoms to each and every disease or disorder I could find. When I came across Lyme, the symptoms page jumped off the screen! I was certain this had to be what ailed me. I went to an infectious disease doctor and took a western blot test. The blood test came back negative and I was told that I ABSOLUTELY DID NOT HAVE LYME! The doctor neglected to mention that the test they administered, the western blot test, was unreliable and could not rule out Lyme completely. Instead he, in my opinion, breached the Hippocratic Oath by advising me with 100% certainty that this was not the disease which was slowly taking away my life. So, based on what he told me, I put Lyme disease out of my head and moved on to search for answers in other directions. Those answers would never come, and unknowingly eight more years of misery were ahead.

By 2003 I was so sick I could no longer work and I began staying home most of the time. I would have good days, bad days and really bad days. It was a mixed bag. After about 5 more years, my symptoms progressed to the point of no return. I no longer had good days. I experienced an inescapable torture in my body and an unrelenting misery in my mind. I thought any day could be my last, and that all those doctors had missed whatever it was inside of me that was doing these horrible things. I decided to make one last effort to see doctors. I was admitted to some of the top medical institutions in the country. I went to Johns Hopkins University and was tested extensively by many doctors and once again they came up empty handed. I then went to Alabama for the Andrews Sports Medicine and Orthopedic Institute to get help with my joints. They confirmed I had arthritis in my joints and were baffled how someone as young as I would be developing this arthritis. However there wasn't much they could do for me other than give me pain meds which I did not take. I wasn't looking for something to mask the problem, I was looking for an answer to the problem. The Mayo Clinic was strike three for me. After spending 3 months in and out of their clinic: they also came up with nothing. My last shred of hope had vanished and I just wanted to escape my pain and misery any way possible. I'm a fighter and I was literally wondering how many more days I could wake up to the certain misery that awaited me. This was my darkest hour. The hour where you must decide if life is worth the fight, an hour that many don't come back from.

Just when my mind was getting too weak to keep going, out of nowhere I stumbled upon a review online about this documentary called UNDER OUR SKIN. It had excellent reviews and it sounded like something I should check out. So I got a copy and watched the film. I couldn't believe my eyes seeing these people and hearing their stories. I was in disbelief that my story was being told right in front of me. Only it wasn't me telling the story. It was others who have had the same struggles as me and for the first time in a decade I didn't feel alone. I watched the film again with my wife. And then watched it again with my parents. That hope that had slipped away from me was back and a light appeared down that long dark tunnel I had lived inside for so long. A light I had not been able to see for many, many years. In fact this year marks a decade of suffering for me. And I trudged forward all those years to finally see that light and God, I cannot tell you how beautiful it was.

I then made an appointment to see a doctor in your film named Dr. "X", and felt strongly that he was the man to help me. I found out he had moved his practice to Washington, DC, and soon I was on a plane to see him. Dr. "X" examined me for at least an hour or two. He then clinically diagnosed me with stage three chronic Lyme disease. I was so happy he recognized in me what I had seen in your film. But I wanted some confirmation that he was correct. After my blood work was done I was shocked again to see a positive result on my western blot test showing I had Lyme. This was the first positive test I had been shown after ten years of being a pin cushion. Yet I still felt I needed to temper my enthusiasm. Not only because I didn't want to be let down from this dream of having my life back, but also because any excitement would trigger anxiety for me.

In retrospect, had the first doctor who tested me for Lyme eight years ago had said, "This test came back negative, however the test is not 100% accurate so we recommend you come back and get retested in three or six months" - that simple statement could have saved eight years of my life.

So here I am today, five weeks into my IV treatment. I have a long way to go, however I am on a road that I never thought I would cross paths with. A road called recovery, and this road, though bumpy, feels so right. I cannot wait to see what is at the end of this road. I believe with all that I am that it will be a new beginning. And it all started with your film. Without it I would have never found an answer and who knows where I'd be or even if I'd be still fighting. I was so tired and so hopeless but God answered my last prayer and led me to you in an indirect way. There is no way I can repay you for the gift that you've given to me. All I can do is thank you so much for your efforts to bring awareness to this ignored disease.

Comments

You should know that Dr. "X"

You should know that Dr. "X" has treated a relative of mine for well over a year now....  Full of false assurances & high priced 'hope', my relative is now in the late stages of ALS.  He could have lived the past year+ free of the antibiotics, free of the side effects, but Dr "X" said, NO chance it's ALS (only Dr in the country arrogant enough to say that), it's Lyme Disease.  Month after month as he got sicker and sicker.  The reports Dr "X" wrote where filled with comments such as 'marked improvement', 'showing progress'.  Dr. "X" is no better than the average con man.  He could never provide statistics or proven cases, only that he had them, that would be unethical, but was quick to say he was secretly helping the government.  My relatives put everything they had into the belief "X" could fix him.  

If you've been told you have Lyme, get every test out there, understand those tests, do your research.  If any LL Dr wants pump antibiotics into your system for 1.5 years, still charging for that "hope", take a step back and look at this objectively, it's probably not Lyme.  If a LL Dr refuses to look at anything other than Lyme, find another.  I have bitter feelings towards these LL Doctors.  I believe Lyme is out there and know people are suffering.  Instead of wasting time and money on producing films on the corruption of the CDC and the healthcare system, why don't you put it into the research needed and rid the system of corrupt Doctors feeding on the weak and desperate.

I just watched this wonderful

I just watched this wonderful film and am blown away by all of it  Thank you so much!

I got Lyme in 1991 in Northern California.  Have had several I.V. treatments and some remission.  Now I would say that most of the functions of my body are affected.  I've given up on getting treatment though, since the i.d. doctor in my town (Western Colorado) treated me with i.v. rocephin for a month and would do no more than that.  It didn't help, and I am afraid my name could be added to the list of those who have died from this disease.  I'm a 61-year-old woman.  I'm currently being treated for heart disease.  Basically, I'm exhausted.  I will re-visit the possibility of trying for treatment  for the Lyme after I'm done, if I can muster the energy.    Just want to say I'm rooting and praying for Lyme patients, LLDs, and all who made this film!                                                                                                                                                                                                                                                                                                                                                            

There is a

There is a chiropractor/naturopath in Pocatello, Idaho who is successfully treating patients with Lyme's disease. His name is Dr. West at the West Clinic. HIGHLY recommend him. He has patients coming to him from all over the United States. Wonderfully compassionate and determined to help people get their lives back.

All the best to you Nathan.

All the best to you Nathan. Although it is a long battle to be well again the worst hurdle is over...FINALLY getting a diagnosis. Many of our stories are so similar. What these "so called" top diagnostic hospitals need are class action law suits against them. I'm honestly getting very tired of so many people going to them and getting NO DIAGNOSIS! My story is #584 on this petition site...so similar to yours. Keep fighting and Get Well! http://www.thepetitionsite.com/1/lymeactionpa/

Your story is so much like my

Your story is so much like my mother's and my own. Just brings tears of joy to my eyes.

I was diagnosed with lyme

I was diagnosed with lyme disease 5 years ago after suffering with stomach pains for over a year- had every test possible including a colonoscopy but nothing was wrong. Got another tick bite and was tested for lyme and came back so positive that they said I had lyme for over a year! Gave me two treatments of antibiotica and felt much better but same synptoms came back- another treatment-moved to florida -same symptoms but now they tell me my symptoms are not usual for lyme! now I keep getting strep b infections chronically- anyone else have this problem? can it be related to lyme?

dear Nathan, my husband and I

dear Nathan, my husband and I were finally diagnosed after seeing 14 doctors in 1990. When I was sent to the mental ward of our nearby hospital because the emergency room doctor thought I was a hypochondriac looking for attention , I realized that GOD put me there for a good reason- to spread the word about LYME DISEASE and started a support group- NORTH CENTRAL PENNA.LYME DISEASE SUPPORT AND INFORMATION Yolanda D. Wolfel 185 center st. apt 701 Saint Marys, Penna. 15857 tel : 814-781-6332. I was on IV-rocephin for 6 months and my husband was on IV-rocephin for 42 days. We were misdiagnosed for over 20 years!!! It is now 20 years since we were treated and now have CHRONIC LYME . We started feeling better as soon as we were put on IV THERAPY. I have been very vocal since 1990 with politicians at the local and state and federal levels.Our doctors do not take LYME DISEASE serious !! THERE IS LIFE AFTER LYME . KEEP THE FAITH AND LIKE MY PRIEST TOLD ME " PERSEVERE ". gOD BLESS YOU AND YOUR WIFE.

This is a story that could be

This is a story that could be any of ours who have chronic lyme disease even though we have have been told there is no such thing. I only fought with one doctor and just ignored the rest until I found someone to really listen. I have been on oral abx for going on 10 years and still have flare-ups just as bad. S(Have had lyme since 1992) My knee joints are gone and I have gone so downhill in everything. The panic attacks,depression,fatigue,etc takes an awful toll on your body. Before this I was walking 15 miles a week and holding down 2 jobs. SO sad and lonely. This really sucks. The movie was great and I wish more people would see it. I hope things work out for you Nathan. You have my deepest sympathy.

Nathan, I too go to Dr. X in

Nathan, I too go to Dr. X in D.C. and have been with him for two years. I've done only oral meds and have seen great improvement with him. I'm not ready to go back to work or do much socializing but I can at least get off the couch now, take some responsibilities around the house, and run errands. I spent 3.5 years rather than your ten going from doc to doc and steadily declining. I just want you to know there is a whole community of us out here who are going through or have gone through the hell of lyme disease. You are never alone. Hang in there...it takes time; perhaps a few years but you WILL get your life back.

I am so happy for Nathan, but

I am so happy for Nathan, but I do have one caveat to these stories....the thousands of us who not only do not have the support system, but also the money to get better. Someone just told me that "Lyme was a disease that only the rich can get better from..." I'm beginning to believe that....I've spent over $250K just to be diagnosed, and now that I have been...I'm broke, like so many others. I am happy that you tell all these "wonderful stories," but you also should let others know the "uglier" side of this illness too. Thank you for listening. Shantiann

Under Our Skin will be

Under Our Skin will be orderable on NetFlix in the near future.

Nathan-

Nathan- Your story is so like that of our nephew. I, too, thank God that you've at last been given the help you need and reason to hope. I pray you will have the strength you need for the ups and downs ahead but I feel confident that the ten years you've already experienced will be a resource to draw upon and that you will, by God's grace, persevere. You will be in my prayers. Our nephew, by the way, is doing VERY well--another reason to hope that you can and will as well.

Nathan, I am one of

Nathan, I am one of the "faces of Lyme" in the documentary, and we were/have been going through this journey at the same time. You so eloquently state the difficulties of this journey, and by mere chance I was at a conference where they were filming and got to be a part of the documentary which I am still so thankful for. I was in the early stages of discovery, so sick, not knowing day to day if it would be my last, and your comments are so moving and inspiring. Thanks for that! Jenn/ schnuddelka

I wish you the very best on

I wish you the very best on your road back to good health. I too was a lyme sufferer and was very fortunate to get my health back. I actually celebrated by running a half marathon last spring. I am thankful everyday to be able to wake (and sleep) without the pain and agony of lyme. Let's hope your story will help others.

I'm so sad you had to go

I'm so sad you had to go through what so many of us have also gone through,but thank God you finally found the answer.Here is a bit of advice,when you feel up to it find a Lyme support group in your area,and join it.You'll be amazed at the info you can get from some of these experienced LYMIES. We care, Dave&Laura Marsh

Congratulations to Nathan and

Congratulations to Nathan and his beautiful wife; what a very lovely couple. I wish them both many blessings on the journey through life. And, thanks so much for sharing. I've had a very similar experience. Watched "Under Our Skin" right around the time that I found proper medical attention/support & passed the documentary on. I'm on the road to recovery as well. Planning a green wedding for April 2011, one year from the date of being treated for CLD. I think in these very critical stages/situations, as long as we have some "hope" .. we have "someone who truly cares", we can go on ... we can be lifted out our beds, out of our darkest days, which lead into months, years... I think some of the greatest acting work that I've done... was in real life; letting my family/friends (mainly my mother) know that I was going to be o.k. I acted the best that I knew how... that I wasn't so sick from this disease; somehow always miraculously pulled myself together, almost into believing it. And, no one would know by just looking at you. Maybe, that you just lost or gained a few more pounds or more, or look a little different than yrs before. Someone once said, "Never let go of hope. One day you will see that it all has finally come together. What you have always wished for has finally come to be. You will look back and laugh at what has passed and you will ask yourself... "How did I get through all of that?" ...yes, indeed. I can only hope that for Nathan & everyone else with Lyme Disease/being co-infected. Esp. for those undiagnosed or misdiagnosed ... May God lead them to getting the rt help.

Nathan, Your story is

Nathan, Your story is incredible!! I am so happy you found "Under Our Skin", my story is similar, I got diagnosed in 2008 after being sick for 12 years. I saw Under Our Skin the same month and cried with relief, Andy Abrahams Wilson is a true "Hero". Please write a book for us and keep in touch so we can keep track of your progress. Your bride is beautiful, congratulations!! Thank You, Jan Dooley

Nathan, Your story

Nathan, Your story is exactly my story, except I nearly died with blood clots on my lungs on May 15, 2008, that's when Dr.'s finally took notice to figure out what was wrong with me. I too had to go out of state to be treated. I NEVER had a positive test, but the I-Genex test showed positive Lyme Specific bands for the antibodies of Lyme. I showed my test results to a LLMD and they knew exactly what was wrong. All of our medical Dr.'s have been lied to at medical school when Lyme is talked about, thank God for Dr. X and all of the other heroic LLMD Dr.'s out there, willing to save our lives. My story is on my website at www.lisabevill.com, scroll down and click on Lyme Disease at bottom and you can read my story. This movie saved my life too.. so I'm right there with you.. blessings on your wedding and gorgeous wife... now have a blessed life.. Are you on Facebook.. I'd love to keep in touch and see what treatments you are on and what has worked for you.... Lisa Bevill

As a father of a daughter

As a father of a daughter that has been fighting Cronic Lyme for almost 20 years I can sympathize with him and the frustration. Even now it is difficult to get the medical profession to accept the extensive damage that Lyme can cause. Thanks for all you do to keep the issue before the public.

Hi

Hi Nathan! I had bad Lyme, too. I was prescribed PICC line Rocephen and along with other antibiotics I am 90% better. And still in treatment ... going for better than that! It's doable. Takes time. Just hang-in there. OK? And you have an excellent LLMD! Diane

So beautifully written, so

So beautifully written, so relatable and all so true. Thanks for taking the time to share your story especially while going through treatment that can be so brutal. Coming up with a word can be hard never mind a letter, so I can appreciate the time it likely took you to compose your letter and the help from others you likely needed to do so. Hang in there, it's a long road yet, as you said one with hope that no one can steal from you and one certainly not longer than the frustrating one you already overcame. Remember, "And we know that God causes everything to work together for the good of those who love God and are called according to his purpose for them." Romans 8:28 Keep your faith and Hang in there. Under Our Skin staff, thanks for sharing.

Nathan, you are in good hands

Nathan, you are in good hands now with Dr. J...I am a patient of his too. I've had lyme (and co-infections) since 1998 and had been given the run around, misdiagnosed, undertreated...the whole gamut for years, while I became sicker and sicker. The unrelenting pain and long list of neurological problems became debilitating. In a nutshell, I was a real mess when I finally found Dr. J in late 2008. I did several months of IV and then stepped down to an oral treatment program. Even though I am still under an oral treatment cycle, when I look back at where I was 2 years ago versus where I am today, it is unbelievable! Dr. J gave me more than hope...he gave me my life back. Hang in there! I know the IV treatment can be hard, and it will take some time to get better. Just keep in mind that since you've been sick for so many years that the treatment is more like a marathon, not a sprint.

Dear Nathan! You are not

Dear Nathan! You are not alone! I have been getting the runaround since I was bitten in 1999-and I did see the tick, feel the bite, have an E M rash, and a positive spinal tap for meningitis one month after the bite. Though the movie was amazing and life changing-I always knew I had Lyme-it was the doctors who did not. So this movie was life changing for the future patients of many of my doctors. The doctors who ruined my life, took 10 years away from my life, and basically took my future away too-they have been given a copy of the movie, by me-and have learned what to do the next time a patient presents with crazy neurological complaints and a bulls eye rash!!!(or without the rash...) It's too late for me, but I'm thrilled for you..you deserve all the health and happiness in the world!P.S. I finally found LLMD's as of 2009-and though I am grateful to them, insurance still has their heads up their perspective backsides, and is refusing treatment.

Nathan, YOU ARE NOT

Nathan, YOU ARE NOT ALONE! Countless numbers of us have walked your path both before proper diagnosis and along the twists and turns of recovery. Thank God for Andy and for UOS. I have had the great pleasure to get to know Andy a bit through his making of UOS. He is as humble as he is a brilliant filmmaker. If it were up to me, he would receive an International Humanitarian Award for his commitment to shedding light on our broken healthcare system and the injustices that we Lyme sufferers endure. You will get better. Hang in there and enjoy every good day. Peace to you.

Would you forward my e-mail

Would you forward my e-mail address to Nathan. His story is almost a mirror-image of my son's. I have few questions to ask him. Thank you, Jeannie

Dear Nathan, Your story rings

Dear Nathan, Your story rings true with me. When I got well from Lyme I started www.nefla.org. If you do not get 100 percent well please consider using rife technology-frequency technology to kill the rest of the bugs. It worked for me when traditional drugs failed. This effective tool can be your back up plan. So Sorry you had to wait so long for a proper diagnosis. Dane Boggs

Thank you so much for sharing

Thank you so much for sharing your story. Bringing this ignored epidemic of Lyme into the conversation helps prevent others from needlessly suffering like we have. I am one year younger than you and can relate to your frustration of losing what should be some of the best years of our life because of this disease. I am on treatment currently. Getting well is a long, slow process. I send you my warmest wishes for a successful recovery and continued improved health. Stay strong. JM

I know your story--it

I know your story--it happened to me too. I'm so sorry you suffered so long and was left alone to find your own way out of the misery. I know what that feels like--it happend to me. I'm glad you didn't give up and that now you are on your way to wellness. I know what that feels like too. I am relatively well now because a fellow Lyme sufferer recognized the disease in me when all the physicians I consulted didn't. By the grace of God and the courage of my Lyme Doctor I am alive again. Spread the Word.

Thanks for sharing Nathan's

Thanks for sharing Nathan's story. I too have a similar one in my quest to find an answer. I am in the fighting/hoping for recovery mode myself, one year into treatments, but I have HOPE now and I've even had some pretty good days recently. The film "Under our Skin" is truly remarkable and yes, the more that can see it, the more that can help others to understand this horrible affliction that causes so much suffering. Education on this is key. Take care and God bless all those dealing with Chronic Lymes. Stay strong.

This is a wonderful story and

This is a wonderful story and as someone who *just* emerged from the he'll that is neurologic Lyme I truly identified with Nathan's letter and reaction to the documentary. I was wondering if the filmmaker could comment on why a film this important is not available on Netflix - the largest resource for DVDs in the US. Isn't the purpose of "Under Our Skin" to spread the word? Is this a question of money? Of Distribution terms? Thanks for a great film, well made, and a story told with power and conviction.
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