Submitted by mark Vincent (not verified) on April 29, 2012 - 8:10am.
From the ancient time lyme is one of the dangerous disease and every year many people die for this due to the lack of proper knowledge on symptoms and treatment of it.So it is required to spread the knowledge on it all over the world and I think you can play a good role to do that by posting more and more blogs on this topic. Thanks a lot for updating this information with everyone.It will be great if you write something on AIDS. Regards, Vincent Licensed Online Pharmacy
Submitted by Anonymous (not verified) on October 19, 2011 - 6:30am.
I just hope that many doctors will see this thread and think about your stories. Medical negligence is not an option for any of us. I was diagnosed with Lyme disease only to see after I insisted to have a more complex set of medical tests that I don't have the disease after all. It turns out that I only needed memory vitamins. I know what you people are going through that's why I think you deserve all the consideration from your doctors.
Submitted by kelly ann (not verified) on September 4, 2011 - 6:30pm.
I am actually a bit perturbed after just viewing the previews to the documentary "Under Our Skin" (I came upon the end of the movie and then have only been able to preview what is online and not the entire movie as I cannot afford to purchase and looking on the schedule to see when it is to be played again). I have also seen a preview on the PBS with doctors in the Baltimore area that gave their views of the movie and found them to be so un-empathetic to patients of this disease and found doctors afraid to go out of the box to help patients, they are so brainwashed as to the Federal guidelines than listening to the patients. Because I was diagnosed with Central Nervous Systems Lymes Disease over a year ago, went thru the protocol of the 30 intraveneous antibiotics treatment to no relief. I still suffer if even more today than I did over a year ago. I have been trying to recieve Social Security Disability to no avail and seems as though it may be a losing batlle after the reviews of this movie. I have lost my state job, my health insurance, my car and recently my home, I have a very minimal amount that I do recieve from the State of Maryland Retirement Systems for Disability, but yet no one else believes that I am disabled, after having the State Medical Director declare me disabled as well as the Board of the State Retirements Systems declared me disabled and to recieve money from my retirement, which is very nominal and am unable to live on such a small amount. I have not been able to recieve any other assistance thru Social Services, Unemployment, Medical, Food Stamps, nothing, notta....my nominal fee that I recieve pays for my monthly medical doctors and current prescriptions that I must pay out of pocket with no insurance....I am in a constant battle of pain, depression, neurological issues and barely able to survive. I feel as though no one cares, especially the Federal Govt, with their so called protocol to Lymes Disease along with the Health Insurances and Doctors that are scared out of their minds to go against the guidelines set by the Federal Govt. No one knows except those of us that continue to suffer with symptoms that increase as time goes on after initial treatment and then the fighing battle to recieve the right treatment and assistance that goes along with this disease. I have not lived for over 2 years, I am in mere existence, and don't see an end in sight, except my death. Please if there is anyone that gives an ounce of empathy and knows how to fight this battle, please, I am begging for assistance in this matter....not a hoax, not a scam, but an honest to goodness, sincere help.....as I cannot afford anymore disappointments with the human race. Thank you for putting this movie out for all to see, but I hope there is some honest to goodness to come out of it for those that are suffering from its rath.
Submitted by Anonymous (not verified) on April 21, 2012 - 8:05am.
Hi Kelly,
I just read your statement. How are you doing? Have you found any relief? Anyone to treat you? Have you tried any online-support groups? Just wanted to touch base to let you know, someone does care.
Submitted by Sandi (not verified) on June 3, 2011 - 8:44pm.
I have suffered with Lyme disease for many years. I have also passed it on to both of my children. I have researched this disease top to bottom, thru and thru. learned enough to know that only we can make ourselves better. It has nothing to do with doctors not understanding or CDC not being knowlegable enough on Lyme, it goes much deeper then that. learn as much as you can about this disease, draw your own conclusion. Do not leave it up to anyone but yourselves for answers or relief. Good luck to everyone effected by Lyme. And may god forgive those who are involved with this disease in other ways.
Submitted by Tina C (not verified) on June 24, 2010 - 6:11am.
I worked as an Animal Control Officer for 8 years in the Bay Area of Ca. I remember management handing us a tiny leaflet warning of tick borne Lyme... and insisting that although they had to provide it to us, that they did not want to scare us. I have fibromyalgia... or so Kaiser insists. But deep within I fear I may have picked up Lyme in daily handling of injured and dead deer... and countless bites by chiggers and possibly ticks. I haven't worked in two years. Lost all muscle tone in both arms. Have shakes in the morning. Pain daily. I can't even comprehend where I would come up with the money to get extensive testing that is more accurate in diagnosing this horrific disease. Meantime... I wait.
Submitted by Randy Garvin (not verified) on May 10, 2011 - 1:58am.
Hi Tina!
My name is Randy and I just read your story real quick. I wanted to write and see how you are doing? I also have Kaiser (well actually now only have it in case of an emergency. I have 3 specialists I see outside of Kaiser. But HUGE battle with them.
If you get the chance email me. Thanks! I hope your feeling better.
Randy Garvin
Email: [email protected]
Submitted by rashell blomquist (not verified) on April 25, 2010 - 1:06am.
I have had lyme disease now for almost 9 years, it took over 5 years and two needless surgies for the doctors to finally dx it. My husband would not give up and insisted that I didn't have chronic myofascial pain (a sister disease to fibro) which is what the doctors finally settled on. A natural doctor out of Calif finally was the one to dx it correctly when I was visiting my daughter. Going back home to Calif it was almost impossible to get any doctor there to help. They do not believe that lyme is in Calif, and dont know what to do to help it either. So I have been going back and forth to Arizona, where I found another doctor that could help me. With holistic medicine I am doing much better, and the lyme is almost out of my body. Antibotics was not the way I wanted to go when I found out how strong and how much I would have to be given and all the side effects. I have suffered with cronic pain, along with partial seizures, shaking, numbness, memory loss, hard time talking and thinking, and a huge list of others symtoms. I saw your site, but havent been able to access the actual stories you have made on lyme. I am hoping to find them, and watch them, and send to the countless doctors that I went to and mis-dx me. Thank you for helping spread the word. There has to be some way to educate these doctors on what tests give you the right results and what to do to cure it.
I send my love and prayers to all those out there fighting these disease, and pray for a cure someday.
Rashell Blomquist
Southern California
Submitted by Thank YOU for making a difference! (not verified) on April 13, 2010 - 1:34am.
Thank you for choosing to talk about lyme and giving some attention to it! I am 43 and I was very very sick for 8 yrs and after seeing and bullied by over 18 doctors saying that I was a "stressed out Mom"--an alternative medicine doc did a test which showed 8 very positive bands for lyme disease. Meeting strict CDC criteria was not enough for my primary personal doc saying "there's no lyme in Texas".
It is indefensible some of the claims of some docs and some people who ignore some or a lot of the facts and the epidemic this issue already is. I passed lyme to all 3 of my kids as I didn't know I had it when I was pregnant--we don't even have pets. Also hubby is positive via intimately. So yes--it is passed on that way too.
I hope that you continue to bring awareness of this terrible disease and educate people. I wa so sick I couldn't even drive or go grocery shopping---stopped working too. With appropriate treatment I was doing great within 6-8 weeks and doing things I didn't think it was possible like taking my 4, 7 and 8 yr old to the park!
Please do another story--MAY is lyme disease awareness month--
Who knows how many people you could spare of getting this devastating disease!
Thank you for all you do!
Sincerly,
Tanah C-Austin, TX
Submitted by Carol (not verified) on March 11, 2010 - 1:18pm.
So happy this film is getting some press. I weighed only 88 lbs by the time Lyme was done with me, with a blood pressure of only 70/40 at one visit.
BUT every person diagnosed with Lyme should read Dr. Robert O. Becker's 'Cross Currents' and 'The Body Electric'. Exposure to electromagnetic radiation in the microwave/radiofrequency bands opens up the blood-brain barrier, and I really think this bug would be easily eradicated if it weren't for all the antennas overlooking our homes since the mid-90's. I'm talking things like cordless phones, cell phones, and most importantly, cell phone and wifi towers and antennas. Google Antenna Search and 'History of Cellular Mobile Communications'. The latter article displays a graph showing that the Lyme epidemic parallels the cell phone boom perfectly. Lyme isn't the problem...it's only a symptom. The symptoms of Lyme are IDENTICAL to those of Electromagnetic Hypersensitivity, Microwave Sickness, Radiation Sickness.
Submitted by Demetria (not verified) on February 28, 2010 - 4:47am.
Thank you People Magazine and to all who were brave enough to come forward and open the door to this lyme disease. I am so stunned to how wide spread this is. I am so shocked that most doctors cannot give you the right tests so you can get treated right away. I mean women getting pregnant and not having a clue as to what is happening to them or the baby. This is outrageous and what it all comes down to is the all mighty fricken dollar. How are we supposed to get better or even know what the hell we have if the doctors are not listening to us. It is 2010 and the insurance won't cover us for treatment on lymes or the doctor could lose his license if he treats his patient for lymes. Where does that leave the doctor but to say oh u have CFS or FMS or MS or whatever just so everyone can make that extra dollar. Nevermind how many people r suffering, how many people r dying. What a wonderful world we live in right.
It is a Saturday and I am home with FMS and the flu to boot. I got sick of lying down and I decided to get on the net and came across the Under Our Skin Blog. Wow what an eye opener.
I just figured out today on 2/27/10 that when I was diagnosed with Fibromyalgia in 2/2002 they were dead wrong.
I have been to so many doctors that I lost count. I still am sick and have gotten worse instead of better. I have tried supplements, antidepressents, pain pills, sleep aids, vitamin shots, panic attack meds ect. I am just so tired of fighting and getting no where. Now I find out that even though I work full time and I have good insurance it's not good enough. If insurance companies don't cover treatment for lymes then what can we do? I don't want to give up. Where r we supposed to go from here? If you r middle class or a single parent how r u supposed to pay for this treatment and still keep a roof over your head. I am just stumped right now. This is crazy.
To all the people suffering with this disease I feel your pain and please keep fighting and praying that a cure for this comes soon. To all the people out there who have a family member or friend suffering from this disease, please dig deep and give them the support and love that they need. It will make a world of difference. I know that is what Jesus would do.
Submitted by T.M.HERSCHELL (not verified) on February 22, 2010 - 1:19am.
I'd like to also thank people magazine for printing this artical,and to all who made this wonderful film.I also have Lyme and for years I've been sick and in pain going from DR.to DR.being diagnosed with one thing or another but guess what? Still remained sick,until a friend of mine from high school moved back to Lawrence and as we started chatching up on our lives,well put it this way she had Lyme and also her son had gotton Lyme from her when she was pregnat,yes pregnat it can be given to your yet unborn child.Moving along as we spent more time with each other she said to me that she thought I had it also,shure enough I went to her DR.and the first blood testing came back positive for Lyme with three different co-infections that was 3/09.Began treatment,a handful of vit.and antibiotics,at least I finally got the right diagnosis but I have a long road ahead of me and for no one to open their eyes and come forward and investigate or even admit yes in deed this is and has been a big epidemic going on here and it's called LYME!!!!so all you so called higher people out there WAKE-UP!!! HELP US PEOPLE OUT HERE THAT KNOW WE HAVE IT AND FOR THOSE WHO MIGHT, HELP THEM GET THE RIGHT DIAGNOSIS.DO YOU WAN'T ANYMORE DEATHS ON YOUR DOORS???? GOD FORBID IF IT HITS YOU OR MORE FRIGHTING YOUR CHILD,THEN WHAT WILL YOU DO???????
Submitted by oanceamb (not verified) on February 11, 2010 - 2:39am.
God bless People Magazine for publishing this article. I have been sick with Lyme and co-infections for years. On a recent trip to San Diego I visited my dad's business partner and his wife. They read the article in People and sent me a copy of Under Our Skin. Thank you Patti and Jerry! This film is incredible. Validating. Enlightening. Gives hope. Thank you to those who produced and participated in this film. When I am cured, I am going to medical school to help others.
Submitted by Linda (not verified) on February 6, 2010 - 2:52am.
I'm so happy to see that People Magazine was brave enough to talk about Lyme Disease. My husband contracted it with 3 co-infections in 2007 and luckily we found a Lyme Literate Doctor. However thousands of people still suffer who cannot afford these wonderful doctors.They continue to be "bullied" by the mainstream doctors who have tunnel vision and don't ever and won't ever go outside the box. Bravo People for your guts...maybe by continuing to put articles in your magazine every so often regarding this epidemic, it will finally get the recognition it so deserves. Politicians and Dr. Steere, do we have to come to you with pitch forks and torches for you to see us and change the Standards? Thanks People...Under our Skin is a great film. Our Lyme Support group has shown it several times and will continue to show it.
Submitted by Laura (not verified) on February 4, 2010 - 8:39am.
I am so happy that this eye opening film is finally being talked about in a mainstream magazine. For far too long, people and doctors alike have been so completely unaware of this horrifying, debilitating disease. There is an unbearable world of suffering that you never knew existed until you enter it yourself, or a family memeber does. Everyone should see this film.
Submitted by Mike (not verified) on February 3, 2010 - 8:19am.
Has anyone on this site heard of the Miracle Mineral Supplement treatment http://www.miraclemineral.org, http://www.jimhumble.biz/ Check it out on the web, it seems to be getting a growing community of users with some interesting results.
Submitted by Sue Massie, ND (not verified) on February 2, 2010 - 7:06pm.
I almost lost my life to lyme, ended up paralyzed from my neck down with what was thought ALS, did 5 yrs. of antibiotics and a plethora of meds.; husband had heart surgery, 6 children all ill due to lyme. I have now worked with thousands these past 12 years as a Naturopathic Dr. and it is still a growing epidemic. THANK YOU Andy Abrahams Wilson and all for making UNDER OUR SKIN. I attended the premier in NYC and it was awesome to see the love and support for such a devastating disease. I will write to PEOPLE magazine as well! Blessings to all, there is healing in all this.
Submitted by karen mclaughlin (not verified) on February 2, 2010 - 1:43am.
Thank you so very much!! Have suffered over 13 years and now my daughter has it and can't be helped. Its awful to watch your child in so much pain and can't help her.
You will never know how much it means to us to have this article published.
Submitted by Dianne Whittaker (not verified) on February 1, 2010 - 4:11pm.
Thank you for featuring Under Our Skin in your magazine. Many in the film are the lucky ones who were able to receive a diagnosis (i.e. a clinical diagnosis) and not a diagnosis determined by the Western Blot blood test, which is only 50% accurate for diagnosing Lyme; there are many false negatives from this test. What is additionally frightening is that many people, especially children, are living with undiagnosed Lyme disease. In children, this can cause learning and behavior problems--evident in the recent record number of "ADDH" diagnosis. Some adults have been diagnosed with CFS, MS, and Fibromyalgia, which are differential diagnosis considered in Lyme. My dog's vet knows more about protecting my dog from Lyme than most doctors do in protecting people. To the medical community--LEARN ABOUT LYME AND THE DEVASTATING EFFECTS IT HAS ON PEOPLE AND LEARN WHAT IT TAKES TO TREAT LYME!
Submitted by Nancy Mackay (not verified) on February 1, 2010 - 1:21am.
I know it took a lot of people to make this film. The people that took the courage to be in the film. The people that had the courage to make the film. All THE PEOPLE BEHIND THE SCENE THAT DID THE RESEARCH TO UNCOVER THE TRUTH. The people everywhere that showed it in thier living rooms, libraries, small theaters, larges theaters. To everyone that took part in getting this film in the eyes of the people. Thank you people magazine. CONGRADULATIONS TO ALL.
Submitted by larry richards (not verified) on January 31, 2010 - 11:35pm.
i have been sick for 25 years with this. i have watched 11 of my friends in the fibromyalgia support group die. seven of them died of arrythmias. only one was over age 60. most were late 40's and early 50's. 4 others died of different cancers. i ran the support group for nine years. i believe there is a lot of crossover between both illnesses. i can easily believe that we are talking about 2 million or more people with Lyme. and at least 4 million with fibro and chronic fatigue syndrome. i also worked for the social security admin for 28 years. i helped over 100 people file for disability with these diseases. this is epidemic in its volume of effected people and is tremendously expensive to our culture in lost work activity and destroyed lives. take this seriously plz!!!
Submitted by PJ Langhoff (not verified) on January 31, 2010 - 8:42pm.
Let's all cross our fingers that the film gets the Oscar nod and the media attention it deserves, along with important validation for hundreds of thousands of individuals all over the globe. Congratulations either way, because in the hearts and minds of many Lyme patients, this film has already won the Oscar for Best Picture in the category of truth in filmmaking.
Submitted by Lisa Bevill (not verified) on January 31, 2010 - 6:31am.
Thank you "PEOPLE" Magazine for doing an article on this issue. The medical community is waaaay behind in recognizing and studying and learning about this disease. WAKE-UP CDC, this is an epidemic you cannot ignore... stop this madness now! It nearly cost me my life!
Submitted by Patricia Heaney (not verified) on January 31, 2010 - 5:46am.
I have dealt with this 33 years, as a patient and as a Nurse. I have survived only because I had the knowledge and the financial support to deal with the concequenses. The film is a great documentation of what many people go thru. I deal every day with people that don't have that option. I wish the CDC would wake up to the reality. of what is going on instead of listening to the lies of IDSA. This is an epidemic and it is not going to improve by ignoring it.
Submitted by Jillian Farrar (not verified) on January 31, 2010 - 3:41am.
This is such wonderful news. People Magazine is read by people all around the world. Seems every waiting room has People magazines to read. Congratulations to Open Eye Pictures and thanks for educating the world about Lyme disease.
how do help the patient with
how do help the patient with their pain???
<a href="http://www.moleremoval.net">mole removal</a>
From the ancient time lyme is
From the ancient time lyme is one of the dangerous disease and every year many people die for this due to the lack of proper knowledge on symptoms and treatment of it.So it is required to spread the knowledge on it all over the world and I think you can play a good role to do that by posting more and more blogs on this topic. Thanks a lot for updating this information with everyone.It will be great if you write something on AIDS. Regards, Vincent Licensed Online Pharmacy
I just hope that many doctors
I just hope that many doctors will see this thread and think about your stories. Medical negligence is not an option for any of us. I was diagnosed with Lyme disease only to see after I insisted to have a more complex set of medical tests that I don't have the disease after all. It turns out that I only needed memory vitamins. I know what you people are going through that's why I think you deserve all the consideration from your doctors.
I am actually a bit perturbed
I am actually a bit perturbed after just viewing the previews to the documentary "Under Our Skin" (I came upon the end of the movie and then have only been able to preview what is online and not the entire movie as I cannot afford to purchase and looking on the schedule to see when it is to be played again). I have also seen a preview on the PBS with doctors in the Baltimore area that gave their views of the movie and found them to be so un-empathetic to patients of this disease and found doctors afraid to go out of the box to help patients, they are so brainwashed as to the Federal guidelines than listening to the patients. Because I was diagnosed with Central Nervous Systems Lymes Disease over a year ago, went thru the protocol of the 30 intraveneous antibiotics treatment to no relief. I still suffer if even more today than I did over a year ago. I have been trying to recieve Social Security Disability to no avail and seems as though it may be a losing batlle after the reviews of this movie. I have lost my state job, my health insurance, my car and recently my home, I have a very minimal amount that I do recieve from the State of Maryland Retirement Systems for Disability, but yet no one else believes that I am disabled, after having the State Medical Director declare me disabled as well as the Board of the State Retirements Systems declared me disabled and to recieve money from my retirement, which is very nominal and am unable to live on such a small amount. I have not been able to recieve any other assistance thru Social Services, Unemployment, Medical, Food Stamps, nothing, notta....my nominal fee that I recieve pays for my monthly medical doctors and current prescriptions that I must pay out of pocket with no insurance....I am in a constant battle of pain, depression, neurological issues and barely able to survive. I feel as though no one cares, especially the Federal Govt, with their so called protocol to Lymes Disease along with the Health Insurances and Doctors that are scared out of their minds to go against the guidelines set by the Federal Govt. No one knows except those of us that continue to suffer with symptoms that increase as time goes on after initial treatment and then the fighing battle to recieve the right treatment and assistance that goes along with this disease. I have not lived for over 2 years, I am in mere existence, and don't see an end in sight, except my death. Please if there is anyone that gives an ounce of empathy and knows how to fight this battle, please, I am begging for assistance in this matter....not a hoax, not a scam, but an honest to goodness, sincere help.....as I cannot afford anymore disappointments with the human race. Thank you for putting this movie out for all to see, but I hope there is some honest to goodness to come out of it for those that are suffering from its rath.
Hi Kelly,I just read your
Hi Kelly,
I just read your statement. How are you doing? Have you found any relief? Anyone to treat you? Have you tried any online-support groups? Just wanted to touch base to let you know, someone does care.
Tracy
Take Enliv"n to treat Lyme
Take Enliv"n to treat Lyme symptoms...
Fell out of bed feeinlg down.
I have suffered with Lyme
I have suffered with Lyme disease for many years. I have also passed it on to both of my children. I have researched this disease top to bottom, thru and thru. learned enough to know that only we can make ourselves better. It has nothing to do with doctors not understanding or CDC not being knowlegable enough on Lyme, it goes much deeper then that. learn as much as you can about this disease, draw your own conclusion. Do not leave it up to anyone but yourselves for answers or relief. Good luck to everyone effected by Lyme. And may god forgive those who are involved with this disease in other ways.
From someone who knows
the secrets inside LYME
I worked as an Animal Control
Hi Tina! My name is Randy
I have had lyme disease now
Thank you for choosing to
What treatment did u have
So happy this film is getting
Thank you People Magazine and
I'd like to also thank people
God bless People Magazine for
I'm so happy to see that
Thank you. Thank you.
I am so happy that this eye
Has anyone on this site heard
Oh, thank you again to
I hope it gets on Oprah,
I almost lost my life to
Thank you so very much!!
Thank you for featuring Under
I know it took a lot of
i have been sick for 25 years
Thanks for the kind words
Let's all cross our fingers
Thank you "PEOPLE" Magazine
I have dealt with this 33
This is such wonderful news.
I am so happy Under Our Skin