Dana, I have a question at around 32:26 of the film you are sitting in the venue and you wince, is this because you get like a head rush sensation and feel as if you are going to black out?

Congrats to you and Timothy! I am so happy to hear that you found someone to love and to love you! That is a true blessing!

Your story touched me deeply. I watched this movie on Netflix last night. Never had heard of it. Since 1993 I have suffered severe debilitating illness off and on ever since, with 1 or 2 months in between bouts. Dozens of tests and doctors, and 18 years later I am still searching for answers. Thought perhaps it was accute Candida and about 50 other problems. Everything from CFS to some rare kind of mild epilepsy. I saw your descriptions of how you felt in the movie.."YOU look fine".."If you had any idea the pain I'm in" and "I feel like I am runing on adrenalin. When the tour is over..". Your descriptions where the sort that my parents and friends heard me say hundreds of times. Right there the film got my attention. Then some of the others in the film got me thinking further. Your journey though stuck with me because it hit home when you talked about how hard it was in your case because on the outside you looked fine but on the inside you were in a place of unbelievable suffering and torment. That is my story too and has been for 18 years. For the past 15 years I have been seeing a psychiatrist and a therapist. They keep trying to push their drugs on me and I don't get better at all. I have argued with them from the begining that I don't think my problem was just anxiety or depression because I think in my entire life I have only had one real anxiety attack. I never or rarely ever get depressed either. I am always a fighter and push onward and try anything under the sun. But your story hit home. I felt like someone out there knows what it was like to suffer like I did. I can't thank you enough for opening up to the world and being willing to tell your story. I kept thinking about your story and the stories of some of the other victims of this terrible disease, and I suddenly remembered that in 1992 I found a large bloated, light brown tick stuck to the back of my leg. It took tweezers and a very hard tug to pry the parasite off my leg. About 7 months later I began to get very severe symptoms but never thought it had anything to do with the Tick at all. I had forgotten all about it until last night. I contacted my mother and asked if she remembered the Tick and she did remember it, so it wasn't my imagination. I thought maybe I had not remembered correctly. Around 1997 I think I was tested for Lyme and was told the test was negative. Now I think I want to try and seek tests and help for Lyme if indeed I have it. But based on the film it's clearly going to be a very long journey if I do indeed have it. And Stockton, ca. Where I live has to be about the worst place to seek any real help. Anyway your story and those of a few of the others in the film opened my eyes to new hope. I am very pleased to read the update on your progress. Sad that your not totally cured after all this time, but 85% must be a major relief for you. And your journey led you to a great husband too! Awesome news!. If you can get through your ordeal then I know there is still hope for me too. Thanks again for sharing your story. It really gave me genuine hope.

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Hi Dana, Congratulations on your wedding. I'm so happy for you and that you're feeling better. It was so sad to see you so ill in the film. My husband contracted Lyme in 2007 but luckily I found a Lyme Literate Doctor in upstate New York. My husband is so much better and he had 3 co-infections on top of it. Anyway, we have shown the film so many times and have a created a Lyme Disease Support Group in Saratoga Springs, NY. The film is so powerful and I'm just so glad that you are better. Take care and stay well. Take care, Linda Bedell-Kwiatkowski

I am so glad to hear things are going well for you! Watching the film, I felt like we were in the same boat. While you were working for U2, I was struggling/working myself into the ground for an NBC show. It is so strange to look completely normal but be in so much pain. I had no really met or heard of anyone who seemed to have some of the same major lyme problems that I did/do. This gives me so much hope. You deserve the best in life and in health. I hope everything continues to be wonderful for you and you just keep getting better. Thank you for the hope! Thank you! -Skyler

Dana, I never knew it got that bad for you. I am happy to seed you found the strength to fight it off and have a recovered! Wishing continued success fighting this disease off and look forward to talking with you one day in the very near future. Your buddy from way back! Armand

Thank you, My husband and I just saw the movie. He has had lyme over 13 years and we just recently got an appointment with Dr. Donta. Out of all the people in the movie he related most to you. He looks o.k. from the outside but is in tremendous pain most of the time. The " How do I look? You look great." stuck with him. He really related to that. Thank you so much for telling your story it means so much to people like us. God Bless You.

Dana, you look as beautiful as you ever have. For a second there, a while back, I almost started to consider the idea that you could possibly be defeated. Silly me. You will always be a super hero to me. Thanks for existing Ryan

Hi Dana, I have seen the film about 3 or 4 times, i now own it and each time I watched it i only wanted to know if you were alright. I am so flooded with releif and feel almost giddy reading about you. I am thrilled you got married, congratulations! Best of everything and continue to feel well. you have and had in the movie the most amazing attitude. you were so positive even in your low momeants. I am in CT and I try to educate people on Lyme and people do call me when they think they or their children have Lyme and I alwasy hesitate a little bit showing them this DVD because I know the impact it had on me. I think I was lucky - had it twice and the first time was 1986 when the Yale Clinic in New Haven, said to me "You dont even have deer where you live!" what a joke... I was LUCKY I got diagnosed because noone had heard of it... so lucky... anyway so happy for you!!!!!!! Susan C. in Weston, CT where there are millions of deer.

Hi Dana... just a quick question... are you on a commercial for Canada??? Everytime I see this commercial I think it's you... looks just like you.... I think you are on a boat looking at fish... I'd love to know if this is you... thanks, Margie Ps...saw you in UOS..we are having our second community screening may 18th...

Hi Dana, So happy to hear that you and Timothy will be at the UOS screening at the Okanagan Film Festival and I hope to meet you then! Thank you for all you do for the victims of Lyme disease.

Dearest Dana and Timothy, Ahhh... what a nice surprise to hear this good news! Happy Anniversary & many more. You two make a very handsome couple. Linda Butler Oxford, CT

Dear Dana: Congratulations!! I am so happy for you! I watched your section of the film with interest and my heart went out to you. I also live in Seattle and I am recovering from Lyme. Like you, I have found a wonderful man who is supporting me in every way as I struggle to get better from this illness. Hooray for Seattle men! They are the best!

Dana - You are beautiful,but beyond the physical beauty it was a joy to see your smile throughout the movie. You persevered with a gracious and gutsy attitude. Conversely, I am a wimp. People know when I am suffering. But you are a rock and your husband found a real gem. God be with you.

Congratulations! and happy healing for this lifetime.

So beautifully written, Dana, and with great humour. I am delighted that you are so much better and wish you joy, Carry

Dana- Your story touched my heart. I could so relate to the fact that people had a hard time understanding your illness, as you look so healthy. When you were laying on the bed in the film, looking like there was no way you could move, I thought to myself--that is exactly how I feel sometimes! Anyway, thanks so much for sharing your story AND for the update. I am so glad you are getting your life back and so happy that things worked out with the "beautiful man" in the film.

Dana, I too have Lyme and I live in Seattle. I really identified most with the way you described your symptoms. I felt like, "OH! someone who feels the same way as me" So thank you for your words, they brought clarity for me and made me feel like I wasn't alone. I have been seeing a doc in West Seattle and he has been great. If you still live here, I would enjoy meeting you and hearing more about your recovery. Congratulations on all the fabulous changes that have occurred for you! Way to stay in the light! Amy

Dana, I met you at one of DK's healing evenings. I happened to sit next to you and you just looked into my eyes and said 'you have Lyme don't you?" Funny how we can tell with others. Anyway, I am about 90% better too! Congrats on the marriage, I am so glad you are better as well. Smooth waters and much love. DK is the warmest of souls. -Craig

Dana, I so identified with ou in that film, and like you, I go to an integrative medicine doctor that uses a combination of natural healing and antibiotic therapy. I am so happy that you found such a wonderful supportive mate in Timothy. I truly believe God sent him to you. Best of luck in your battle and your marriage.

Dana, would you PLEASE write me back.. out of all the folks with Lyme that I can best relate to, i can relate to your story more than others. I'm desperate to know how you are coping and relating with life. I'm working with a LLMD and am getting better as well. I'm a professional singer in Nashville, TN..and this crappy disease has nearly taken my life and career. I've written about it in my journal on my website and have consistently talked about this walk, this journey, but sometimes it's very hard to take. I would just love to speak to you about what you are doing specifically to make it through and wonder if you ever did IV antibiotics? How can we find out more about your personal story and protocol that you followed? thanks, lisa bevill www.lisabevill.com, also on Facebook.. do you have a facebook page?

you are inspiring! after almost 2 yrs, a diagnosis of "possible ms" and eventually retested for lyme.....(pos)- i am looking up! and a yr ago - i saw no light at the end of the tunnel!.........been a long journey! and i take it one day at a time..............as you know! thanks for your story you share!..........encouraging to others....... may the lord bless you! Jenny

[...] the movie I have met Mandy, Dana, Elise, and Kris and we have shared our stories, and not without a few tears and a good many hugs. [...]

Dana: I watched the film and you were a very interesting and captivating subject in it. Thank you for leaving us an update on your recovery. We hope you will start feeling great (towards 100%) and can enjoy life to its fullest.