The doctor is in: An important update on Dr. Joseph Jemsek

dr_jemsek.jpg When we began filming UNDER OUR SKIN, we had no idea that Dr. Joseph Jemsek, the North Carolina physician treating our main character, Mandy, would end up embroiled in a courtroom battle every bit as dramatic as Mandy’s struggle to regain her health. In 2006, Dr. Jemsek was the only Lyme specialist operating “above the radar” in the southeastern United States, and his clinic was admitting an average of 80 new patients a month, from 46 different states. Dr. Jemsek, an infectious disease specialist who had been treating AIDS patients since 1983, started noticing a growing number of very sick Lyme patients in his clinic around 2000. Using strategies he had learned from treating AIDS opportunistic co-infections, he began having good outcomes treating Lyme patients with long-term combinations of antibiotics. But Dr. Jemsek's vocal criticism of the Infectious Disease Society of America (IDSA) and its rigid position that 2 to 4 weeks of antibiotics cures Lyme disease, soon got him into trouble. After an email from a disgruntled Lyme patient ended in the hands of Dr. Allen C. Steere and Dr. Gary Wormser, lead authors of the IDSA Lyme guidelines, Dr. Wormser forwarded it with the header “Lyme Disease IV antibiotic treatment, Insurance Fraud in NC,” to the CDC, who in turn forwarded it to Curtis Ellis, Director of Investigations, North Carolina Medical Board. Once an investigation was opened, the board was at liberty to pull all of Dr. Jemsek’s Lyme patient files, looking for violations of the IDSA “standard of care,” which takes on the force of law in North Carolina, even though Dr. Jemsek followed the alternative ILADS Lyme guidelines. (ILADS guidelines cite evidence that’s supports this position: “The duration of therapy should be guided by clinical response, rather than by an arbitrary (i.e., 30 day) treatment course.” In the end, Dr. Jemsek’s license was suspended but “stayed” for a year, meaning he could continue to practice medicine under tight restrictions. However, Blue Cross Blue Shield of North Carolina seized the opportunity to follow up on the medical board’s judgment with a $20 million lawsuit, for Dr. Jemsek’s alleged “unnecessary” antibiotic treatments. (For more details, read the article, “Struggles Continuing Amidst Lyme Wars.”) Meanwhile, the CDC reports that Lyme disease cases continue to rise in the South, with North Carolina and South Carolina cases rising 71% and 55%, respectively, from 2006 to 2007. What's more, there is another Lyme-like disease, called Southern Tick-Associated Rash Illness or STARI, for which there is no accurate diagnostic test. This disease is spreading rapidly in this region, and like Lyme, it is treated with antibiotics. Dr. Jemsek, who has been in bankruptcy proceedings since 2006, was forced to close his practice in North Carolina. He has reopened his clinic in Fort Mill, SC, and currently has a three-month backlog of patients waiting to see him. One North Carolina Lyme patient summarized the impact of the Jemsek hearings: “I saw the chilling results after Dr. Jemsek was called on the carpet. Doctors in North Carolina live in fear of prosecution and countless chronically ill and infected people live without medical care. A doctor there told me that Dr. Jemsek was brilliant and may be proven correct in 20 years, but in the meantime, doctors can't risk losing their licenses by treating chronic Lyme disease.” For more on the climate of fear surrounding treating Lyme patients, watch the UNDER OUR SKIN video clip “Physicians under attack.”

Comments

I was heartbroken to hear

I was heartbroken to hear about his daughter with leukemia. He saved my life with his compassionate knowing treatments ten years ago, or at least gave me a life I want to live. I am not cured, but at least now am functioning at a decent level. So sad that he can't help my friends or family with insurance that are now suffering from Lyme. I consider myself blessed to have been his patient.

Does most insurance and 

Does most insurance and  temporary medical insurance companies cover any of the treatments of the doctor? Or do they follow the guidelines of the other infectioous disease organization? I would hope that eventually the guidelines will change in treating the disease and other doctors will follow in his footsteps.

I was misdiagnosed for 12

I was misdiagnosed for 12 years before being treated in another state. Due to severe cold intolerance, my husband and I were forced to relocate away from our family and friends. We came to NC for Dr. J. Then he was forced to leave. Upon moving south I had a pretty bad case of neuropathy in my feet and hands. Dr. Jemsek helped me out with this to the point where I only need to refill my medication about once a year, if that. I have had this disease for 20 years now. Dr. J has helped me to maintain my quality of life despite this. I too was treated by the standards of the day in 1990 and yet Lyme persisted. When I lived up north, I thought traveling 2 hours was a long time to travel to get to my Lyme doctor. Now it's about 6 hours one way. I know I am blessed to have a doctor even within that radius. Thank you Dr. Jemsek.

As one of Dr. Jemsek's

As one of Dr. Jemsek's patients, I was heartwrenched by this manufactured controversy, for this good doctor who was strangled out of his livelihood, appalled by the monsterous terrorists who stole his capability to adequately treat his patients, the idiots who filed the lawsuit (who were no doubt not only greedy, but also suffering from the lyme neuopathy that causes severely flawed thinking..., but also worried for each of us, his patients. I tried to continue care, up until my pregnancy with my third child... who has been born Lyme free, unlike his siblings who were born before my diagnosis and treatment, but despite Dr. Jemsek's compassionate desire to help his patients by charging less than necessary for his businesses need, after the insurance debacle, paying so much per visit became cripling financially. Waht a horrible situation to be in- crippled physically or financially? I am now in the nasty situation of driving far, far away, and choosing another literate doctor in order to continue care- not because I am in ANY way displeased with Dr. Jemsek's care, but because there's no way I can both pay for care and feed my family. And we're financially secure and have no major debts and are employed. HOW can they legally DO this to us? How can some organization PROVEN to be corrupt suck the life out of all of us and steadily kill us one by one with their debaucherous practices, until we each give up and are left living in this massive, debilitating pain, purely because they don't like it if someone disagrees with them? HOW is this OK in the US?!?!?!?

[...] He can also be seen

[...] He can also be seen speaking on the Under Our Skin Academy Award nominated documentary. Here is his page on the Under Our Skin website. [...]

[...] I always found a way to

[...] I always found a way to ignore what my body was trying to tell me. It was only by a twist of fate and a concerned brother that led me to finding a doctor that would change my life forever. We call these doctors “Lyme Literate MDs”. Sure, any doctor can be knowledgeable of Lyme Disease and it’s existence, but so very few doctors truly understand the devastation it can leave behind if left untreated or not discovered into years later. LLMD’s are very controversial and rare because they go against board certified guidelines that dictate how LD is to be treated. The guidelines themselves are a sticky subject and are regularly disputed. I won’t go into too much detail about the who’s and what’s but if you ever want to understand the controversy of Lyme Disease and why the truth is usually hidden you should see this movie, Under Our Skin. Thousands of LD sufferers lives have changed thanks to LLMD’s. Unfortunately, that’s not always enough and some of them have had their medical licenses revoked. [...]

I'm going to see Dr Jemsek

I'm going to see Dr Jemsek June 4th, I just happen to have that day off work. I've read what seems like a zillion comments from current and former patients and have this unwavering feeling that he will help me regain my life. I've been living with lyme for about a year now and am worse off, even after five months of antibiotics. It's hard to find a good doctor, one who will actually listen. I pray Dr Jemsek is the right one for me... the one who with God's help will make me better.

Dr.Jemsek has been my doctor

Dr.Jemsek has been my doctor since 2004. He is one of a kind and for those patients that have him for a doctor, they are truly blessed. Please keep Dr. Jemsek and all the physicians that put careers on the line to help Lyme patients in your prayers. Elaine, Fort Mill, SC

I was diagnosed with lyme

I was diagnosed with lyme disease after going 2yrs. missed-diagnosed by many many physicians. I did not have a bulls-eye rash or a positive Elisa. I did however get back a positive western blot 2yrs later. Needless to say I ended up in a wheelchair and suffered severe neurological symptoms. Thanks to Dr. Jemsek I have my life back, my wife has her husband back, and my children have their father back. What price could you put on that? Before treatment I could not walk to the mailbox to get the mail (50ft). Now I am up to walking a mile a day 3 times a week. My goal is to one day run a 5k. Dr. Jemsek is a physician ahead of his time. He is compassionate and cares about his patients. He has truely inspired me to become proactive in the fight against this disease. Thanks to his inpiration myself and several others were able to hold the first lyme disease awareness rally last May in Columbia, S.C. at the state capitol. Keep up the great work Dr. Jemsek! You, your family, and staff are all in my prayers. Pastor Scott. Loris, S.C.

Dear Pastor Scott, My mother

I do hope that Mandy gets

I do hope that Mandy gets better and that her treatment will be successful. That's really scary about another lyme type illness coming from a tick, "Southern Tick-Associated Rash Illness or STARI" Wonder if we will have just as much a fight with treatment for that one. I will pray that those in our government finally wake up and that Dr. Jemsek's lawsuit will be dropped.

My poor mother suffered from

My poor mother suffered from a terrible case of Lyme's disease starting back in 1973 and was finally better in 1991. It started with horrible bouts of mental illness taking over her life and our families. She was in/out of hospitals most of my childhood. In 1991 she woke up paralyzed from the waist down (guillain barre), an effect of lyme's. The doctor's in NJ gave her no hope for recovery, so I took my mom home and my dad, brother and I tried to help her as much as we could. One of her sister's came out to help us take care of her from Hungary, our native country. She brought my mom back to Hungary for treatment. She was in/out of 3 different hospitals. They SAVED HER LIFE by a procedure called: PLASMOPHERISIS. This involved blood cleansing. They took one arm and cleansed it in a machine and put the cleansed blood back into the other arm. She also went to 2 intense physical therapy hospitals to get her up and going. One of the happiest days of my life was when we went to pick my mom up from JFK Airport in NY and she walked to us. Words cannot describe. She has also been cured of her mental illness. For a poor country, Hungary sure got on the ball and got her back on her feet and gave us back the mother/wife my father fell in love with 44 year's ago. My father always says, "With health and happiness you are the richest person in the world." Never give up. God Bless you all.

My reply of late is I've been

My reply of late is I've been treated for 11 months with Iv anti biotics now followed by orals. Brain fog is gone. Unexplained uncontrollable weightloss is here as well as muscle wasting, rheumatoid arthritis, peripheral neuropathy in legs has also moved to arms. The local neurologists that intially misdiagnosed me know now I have Lyme and your right , they don't want to touch me. Being here inIowa our Dr. choices are small as well as my HMO alowing me to go out of network. It just seems my health train is moving fast and at fast speeds. The doctors have really forgot there oath and don't want Lyme patients. Just as bad is social security disability insurance and payments. I have been denied from Jan 2007 and it's now July 2009. It seems the sick and bed ridden patients can't receive it. That system is broke too. I practiced prior to health problems as a nurse and never gave our health care system a 2nd thought, because I gave all my patients great care and questioned the Drs. if I didn't think they gave there patient the best of care. It's too bad more nurses don't challenge there Docs to do better for us. I never thought this would happen to me.

A close friend was involved

A close friend was involved in the case against Dr Jemsek. She also made the leap of faith necessary to be treated in the aggressive manner prescribed (that has obviously been very effective for some). The problem is these treatments nearly killed her. She suffered many avoidable and forseeable problems. She is trying to move on with her life so asked me to not identify her but this was not a frivolous suit regarding laws and technicalities. There were real people hurt badly by this same man, they deserve not to be demeaned by misinformation about a rightly won suit against Dr Jemsek.

Dr. Jensek is a Quack that is

Dr. Jensek is a Quack that is draining his paients out of their money and strength.  These paients are looking for any hope they can find at any price.  They all seem to be dying slowly and with no financial funds left to their name.  Shame on this creep!!

 

For the last few years, this

For the last few years, this doctor has drained over $100,000 from my family to treat a family member who now is near death but is still a believer. Since they are now broke, he has decided the patient is too weak for another round of "intensive treatments". I am hoping that being broke will save my family member from this guy.

Although I can no longer

Although I can no longer afford to see him anymore due to the costs of travel and insurance rejections, Dr. Jemsek remains in my mind and in my heart on a regular basis. He is the only doctor that I absolutely trust, even among other well-known Lyme docs I have been treated by. Wonderful, intelligent, knowledgeable. Thanks, Dr. J.

For all of you who are

For all of you who are reading this who are physicians in N.C., hopefully, all of the Lyme Disease controversy will be clarified and you will be able to diagnose Lyme. In the meantime, just be aware that everyone is at risk of Lyme Disease in N.C. and this means you and your family. You can either continue to deny that Lyme is here or you can investigate it for yourself and be part of the solution. Whatever you decide, I don't think Lyme Disease is going away.

Dr. Jemsek is literally

Dr. Jemsek is literally saving my life. He is working with my local doctor to help guide her using the appropriate ILADS tools that are finally bringing me from a prone to a standing position. Everyone reading this had better know that Dr. Jemsek is a savior to the Chronic Lyme and Lyme co-infected patient. He has the heart of a lion and the persistance of no one I've known to help me to try to restore my health to a "well- life" instead of this "hell-life" I have been enduring for the last five years. God Bless you Dr. Jemsek. And thank you. Steve Ward, Nevada Lyme Disease United Coalition, an Affiliate of Lyme Disease United Coalition of Iowa.

Dr. Jemsek is a great doctor.

Dr. Jemsek is a great doctor. He really cares about his patients and takes the time to really listen. He is very detailed and goes through every single symptom. It is a shame with everything that has happened. Now people must pay out of pocket in hopes their insurance companies will reimburse for "some of the costs". This makes it so difficult for folks to go and be treated. I think he is well worth the money.

The RI law is well known

The RI law is well known everywhere, even mentioned in Cure Uknown, but everytime a doc opens shop here they are buried within days and the case load is too much...therefore, they move on or simply cannot take on anymore patients. RI Hospital won't touch anyone who does not have a cdc perfect test, and even with that, they under treat. They may as well close the clinic- it's useless.

RI has a law protecting the

RI has a law protecting the doctors here, yet there aren't any doctors moving here? They passed a bill here to keep from prosecuting doctors who treat lyme here. There should be a better way of looking it up but check it out. We have been trying to convince Dr. Jones to treat in RI for this very reason. Erin

I am also very grateful to

I am also very grateful to Dr. Jemsek and the continued support he gives us patients with Lyme. I'm from Wisconsin and traveled to South Carolina in 2008 to see him at my insurance companys request to see a board certified Dr. of infectious disease. I was told I needed to have IV antibiotics in order to regain my health. The insurance company would not take Dr. Jemsek's recommendations. I needed to see a doctor that they sent me to, after I already had to other board certified doctors state this is what I needed, IV antibiotics! I'm now on oral antibioitics only because by my insurance company's standards I don't have Chronic Lyme. Thank You Dr. Jemsek for fighting for us. I know in due season, patients like me will receive proper treatment. The medical directors and insurance companys are finnally being exposed through the DVD "Under Our Skin". Thanks again

According the powers that be,

According the powers that be, there is no Lyme disease in Texas. They have successfully ran off Lyme-literate doctors from the state and requiring those of us needing treatment to make out of state trips to get treatment. It is cruel and even criminal (if not by law, by moral-humane sense of decency)to make us feel like criminals--sneaking across the country to get treatment and feeling the need to keep things quiet for the sake of the physician/s who are also treated like criminals for daring to help reduce human suffering. How ironic that people who are in the scientific field (i.e. open-mindedness) and are committed to "first, do no harm" are acting like religious and idealogical zealots bent on crushing anyone who does not accept their iron-clad doctrines. As seen throughout history money and power make for a very intoxicating mix that shows both the best and the worst in human nature. This physician and others like him show the best of human nature. I wonder who exemplify the worst human trait in this fight? The "fight" in this doctor makes me wonder if he has some Texas blood in him? Either way, he's a good human being. That's most important.

Dr. Jemsek is a giant in the

Dr. Jemsek is a giant in the Lyme community. I put him right up there with Dr. Burrascano. I've referred many on my support groups to see him in NC, then during the medical board witch hunt and now I send them to see him in SC. Jim in Jax

Dr Jemsek saved my daughter's

Dr Jemsek saved my daughter's life. We have battled chronic lyme for 8 yrs now. I can not imagine what my daughter's life would be like if we had not gone to Dr. Jemsek. Shame on those that continue to hold down doctors like Dr. J. We have met so many "doctors" that will not even admit Lyme disease is in NC. Thank you Dr. Jemsek. Thank you for giving me my daughter back.

“Into the Light” Lyme Disease

“Into the Light” Lyme Disease Awareness Gala: The Darkness of Lyme Disease Revealed Join the Jemsek Clinic of South Carolina, sponsor Turn the Corner Foundation, and co-sponsor National Captital Lyme and Tick-borne Disease Association for the Charlotte Theatrical Premiere of the Award-Winning Lyme Disease Documentary, UNDER OUR SKIN. Ballantyne Village Theatre, Charlotte, NC on Friday, March 20, 2009, from 6 PM-10 PM http://www.intothelightgala.com/

I have seen tons of doctors

I have seen tons of doctors before and since my diagnosis with Lyme Disease. Dr. Jemsek is the only doctor who I trust and who takes the time to listen to what problems I am having, and then makes adjustments to my treatment program when necessary. He has helped me (and continues to help me) get my health and life on track and I am forever grateful. I mean, how can you not love and trust a doctor who is willing to put everything at stake for his patients?

It's a shame to persecute the

It's a shame to persecute the good Drs. that aare on the cutting edge of this disease. It definately sends a message to the other DRS. to turn there backs. I have Lyme Disease we almost had a young resident committed into staying and helping the Lyme patients in the midwest. I fear he too he ruunning scared. Ever nite when I go to bed it does cross my mind whether or not I will live until morning. I'm 48 years old my death shoud not come so soon but theres a good chance it will. We need more Drs. like Dr. Jimseck!

The admiration and gratitude

The admiration and gratitude that I feel for Dr. Jemsek goes beyond what words are able to express. Not only is he a brilliant physician and diagnostician, his compassion and dedication to my healthcare was remarkable. Risking his very career in order to practice a sworn oath of "First, do no harm" -he never gave up on me...even at those times when I was ready to give up on myself.

I will be seeing Dr Jemsek

I will be seeing Dr Jemsek for the first time in 2 wks. Ive heard from so many people that this wonderful man saved their lives. I am praying he will save mine also. After being extremely ill for 2 years I have no other choice then to seek medical treatment from this brilliant man!! Ive been treated for lyme and coinfections for a year now with many setbacks and no progress. I believe based on what Ive read and been told that he is the only one that will be able to help me. Thank God he is still practicing medicine!!

THIS MAN SAVED MY LIFE AND I

THIS MAN SAVED MY LIFE AND I LOVE, LOVE, LOVE, LOVE, LOVE HIM!!! I just can't say enough about the guy! He's wonderful; but don't forget about his loving family and dedicated staff: thank you for everything! I love you guys!!!!! xoxo Mandy

I live in a highly lyme

I live in a highly lyme endemic area of Pennsylvania, met the CDC criteria and received a positive result on the Western Blot for lyme over 11 years ago. I was treated for lyme, as per the IDSA guidelines. To rephrase it, I was inadequately treated as dictated by the IDSA guidelines and the insurance industry. And that is precisely why, here I am, so many years later, with debilitating neurological symptoms and pain...STILL battling this disease. But I'm a fighter and I don't give up that easily. So, 5 months ago, I traveled to South Carolina to begin treatment by an incredible doctor who is a fighter; Dr. Jemsek. Dr. Jemsek has the courage and belief in the Hippocratic Oath he took, to follow his heart and treat lyme disease patients like me, using as his arsenal not just the science of medicine but also the art of medicine. It is often an uphill battle with lyme disease, both for the patients as well as the doctors. It's a journey filled with hurdles of 3 steps forward and 2 steps back. But, I can finally say, as a patient in the middle of this long battle, that I can see there is a light at the end of the tunnel. And Dr. Jemsek is my doctor who is lighting the way.

It is hard to believe that

It is hard to believe that persecution of devoted and caring doctors continues in this day and age and that the IDSA and insurance companies are still allowed to get away with this deception and cover up. Thank heavens fo Dr. Jemsek and others brave enough to fight to be able to care for and treat all these desperate and sick patients. One day they will be rewarded, of that I'm sure.

This is totally unfair. I

This is totally unfair. I live in an area where others come to try to get answers and not one doctor in our city will touch this disease and you can see why. I am friends with physicans and you can see why their hands are tied to try to help patients. Dr. Jemsek is a great human being.

After 15 years of illness and

After 15 years of illness and progressive decline, Dr. Joseph Jemsek has saved my life. He is a brilliant doctor and a warm,caring human being. Refusing to give up, Dr. Jemsek continues to practice under the worst kind of distress, disparagement and persecution. Chronic Lyme is a life threatening illness. For medical boards and insurance companies to intimidate and destroy the very doctors who offer healing and life can be labeled only as criminal. My Best to Dr. Joe and Family, Ellen
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